A few days ago I happened across a photograph of Joseph Merrick (below), who suffered from Proteus syndrome. I hadn't seen this picture in years and it was almost as if I was looking at it for the first time. One of the striking things about it, I think, is the clear gaze from his left eye (right hand side of the image, obviously), set in small patch of 'normal' temple and cheek. You glimpse a 'normal' man, fully conscious, and dignified, behind the monstrous mask of deformity.

Merrick is due respect and remembrance as a human being. At the same time, the images of his skull (below: photograph front view, CAT scan side view) look to me like metaphors for some of the mental deformations (and masques) that individuals and societies sometimes undergo.


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